October 31, 2011

Silly Faces

Can you say personality?
This girl is full of it...
and not camera shy:)


Cherishing these silly faces
and the energetic heart behind them:)

Journeying On,




October 21, 2011

Perspective

For the last few weeks I have been attempting to organize and back up all of our pictures and videos, which has been a long process.  Part of me is sad that it is done from behind a computer.  I think I would enjoy sorting piles of memories, while sitting on my living room floor.  But the digital world does seem a little more efficient:)  As I was sorting, I ran across a couple of videos that deeply encouraged my heart. 

You see, we're still fighting the battle of eating in our home.  We try daily, and fail often.  My heart is frequently discouraged over this, wishing for a secret method that work at every meal...

But God desires my heart to learn patience...and I have a long way to go.  Of course, I wish he didn't need to use my children to teach me this, but it's not the first, nor will it be the last lesson He teaches me through them.

This was taken almost one year ago...
Not a big fan of food in his mouth



This was taken last week...


So today I'm choosing to look at the big picture...
to see how God is working over time...
as strength and healing are brought to their little mouths, throats and brains...
hoping my heart remembers, and holds on to these miracle moments...

Journeying On,

October 11, 2011

Tests

For the past two months Ethan has been having his blood work checked every two weeks.  In all honesty, doctors were expecting his counts to have fallen by now, causing the need for several transfusions.  I think we were expecting it too... 

Two weeks ago we took Ethan to Vanderbilt for some preliminary testing that would need to be done before they started a transplant (should that day come).  They did a lengthy developmental test (almost three hours), a swallow study (video x-ray of him swallowing barium) and labs.  He did great on all three!!  He scored right between his chronological age and adjusted age developmentally.  He had several good swallows showing that he is able to protect his airway when eating/drinking. And his labs were completely normal.  We left the day very encouraged and rather proud parents:)

Over the past two months I have found myself anxiously waiting in the doctor's office of our hematologist/oncologist.  The time between his little finger prick and when the doctor walks through the door with that piece of paper has seemed to take forever.  But this morning was different.  For the first time, I was expecting the doctor to say that all of his counts are still normal...and he did:)  So normal that we have decided to just check him every four weeks instead of every two.

We are so thankful for the health the Lord has given Ethan!  As we continue to watch the Lord work in our family, we are hopeful that His name will be praised and honored....no matter what may come. 

Just wanted to give you a chance to praise with us!

Journeying On,

October 7, 2011

Oh Fall

Ethan loved the horse

Boys and their tractors

This girl loves her daddy

Giant slide was pretty fun

Ethan is a little thrill seeker

Love this smile; glad he was standing still long enough to catch it

Sweet girls
(kids group picture turned into a girl picture
when both the boys jumped up and ran away) :)


Slight melt down...it didn't last too long

Seriously....this girl loves her daddy

Thank you, Jess for picking up my camera:) 

Picking the perfect pumpkin

Welcome Fall!

Hope you're enjoying these warm fall days as much as we are!

Journeying On,


October 2, 2011

Best Buds

.....well most of the time:)  It really is fun watching Ethan and Addison become best friends.  They really love each other if they don't have to share toys.






Sadly my camera was on the wrong setting, but I still love that we captured this precious exchange:)

Journeying On,