Thankful Thursday

A party

Excited partiers:)

Adventuring

a musical heart

learning patience

they learn it waiting in line for rides

I learn it waiting to hear from doctors, therapists and insurance:)

Journeying On,

When Hope Seems Broken

Early afternoon this symbolic reminder toppled to the floor...it seemed way too fitting for the events that had unfolded throughout the morning.

I logged on to our health insurance account yesterday morning to see if any files had been uploaded about our pending preauthorization for the inpatient feeding program.  And this is what I saw....

Hope was stirred...

But I didn't see one for Ethan....so I called.  After three hours on the phone with the insurance company and the feeding clinic I learned that the doctor to doctor consult had taken place on Wednesday; and that the insurance company was upholding their decision to deny coverage for the inpatient feeding program at Kennedy Krieger Institute.  

After that, more than just our small sign of 'hope' seemed broken...

We will now start the appeal process and perhaps look into the outpatient day program that they have, but it seems like a long road and hard fight; always with more questions than answers.  

When my 'hope' sign came flying off the shelf shortly after, I almost laughed at the irony...

Perhaps I have placed to much hope in a feeding clinic as the miracle answer for my kids, when there is only one place to put hope.  While medical professionals can be a great resource and tool, they are not worthy of affections intended only for our God.  Of course, I'm sad and frustrated that we aren't headed to Baltimore right now, but today my hope is in our Sovereign God who intends only good towards His children.

Thanks to the powerful ministry of the Spirit (and a little superglue), hope is restored as we press on in this journey towards Eternity.  

I am counting on the Lord; 

yes,  I am counting on him.

I have put my hope in his word.

Psalm 130:5

Journeying On,

Thankful Thursday

A new found treat....seriously....these are awesome!!

My car cleaning efforts yielded a good crop

A clean plate:)

A shared treat

 Accepted gifts (bites) from a sister

Journeying On,

Thankful Thursday

Big muscles and crazy hair

A picture with my kids and a ride enjoyed by all:)

Best kid friendly carts ever at the Handy Manny store (i.e. Lowes)

That this is bolted to the wall since Ethan was sitting on top of it

Heart shaped strawberries found by little eyes

Journeying On,

Thankful Thursday

I know....you're thinking I wasn't very thankful last week.

Or perhaps it's more likely that I just told on myself 

because most of you didn't even realize there wasn't 

a 'thankful thursday' last week.

The truth is I was very thankful....I just didn't get it documented.

Library books and movies:)

All kinds of unique creatures....wow, God is creative!

Red shoes

Toddler talk

There's really no picture for the last thing I'm thankful for today.  I tried to think of something, but there's just nothing adequate to express my gratitude for where our family is today versus this time last year.  On July 5th of last year I was taking a very sick little boy to the hospital and we were starting down the road of pre-leukemia, MDS/Monosomy 7 and a bone marrow transplant.  We have experienced a year of amazing healing, grace and strength for our little guy....beyond thankful for this amazing gift!

Journeying On,