January 1, 2012

Out with the Old; In with the New

I don't have a fancy smart phone with a fancy calendar.  And as hard as my husband tried to get me to use google calendar, I'm just stuck in my old ways. I've been using the same format to schedule my life since I was a freshman in high school, and I'm not about to change now:)  So, yesterday I closed a book for good and put it in the box with the previous years.


This little book is really a journal to me.  It holds reminders of heart ache, sickness, health, sweet memories and many, many miracles.  And so it is bittersweet to place it on the shelf and begin a new book.  I'm familiar with the old and have adjusted to what it holds.  The new is very much unknown and not at all familiar.  Although it has few markings now, I pray it holds proof of countless miracles for His glory with 2012 comes to a close.


My prayer as I move on from the old and into the new...

My God, I bless Thee that Thou hast given me the eye of faith,
to see Thee as Father,
to know Thee as a covenant God,
to experience Thy love planted in me;
for faith is the grace of union
by which I spell out my entitlement to Thee:
faith casts my anchor upwards where I trust in Thee
and engage Thee to be my Lord.
Be pleased to live and move within me,
breathing in my prayers,
inhabiting my praises,
speaking in my words,
moving in my actions,
living in my life,
causing me to grow in grace.
Thy bounteous goodness has helped me believe,
but my faith is weak and wavering,
its light dim,
its steps tottering,
its increase slow,
its backslidings frequent;
it should scale the heavens,
but it lies grovelling in the dust.
Lord, fan this diving spark into glowing flame.
When faith sleeps, my heart become an unclean thing,
the fount of every loathsome desire,
to cage of unclean lusts all fluttering to escape,
the noxious tree of deadly fruit,
the open wayside of earthly tares.
Lord, awake faith to put forth its strength
until all heaven fills my soul
and all impurity is cast out.

From Valley of Vision: A Collection of Puritan Prayers.

Journeying On,

Christmas Festivities

Pre Christmas...
A very special visit from Great Granny Raby


Nothing like no pants AND Elmo slippers:)

My best attempts at a picture in front of the tree....we'll take it:)



A Dollywood Christmas








Christmas Day...

Jared's Papaw finished these very sweet rocking chairs for kids.
A treasure we will have and enjoy for a very long time!


Poor Jackson got all his toys stolen:(  







A little Christmas melt down made the day seem normal:)





A visit from one of our favorite friends (thanks Kyra)



Ended the day with Papa T and CC
Sadly, it wasn't until the end of the day that I realized we hadn't taken any family pictures.  You would never know that we went to Dollywood with 11 other super fun people or spent Christmas day with our families. Nate and Joy even drove from Texas...and no family picture.  Guess we were too busy enjoying the day.  Hoping your family also had a very merry Christmas!

Journeying On,


December 13, 2011

December 10, 2011

Biopsy Results

It was taking a little longer than I wanted it to. So, when we hadn't heard anything about Ethan's bone marrow biopsy last Friday (12/2), I e-mailed the office coordinator the following Thursday (12/8).  I know, I'm not very patient.  But I knew they had to have the results back by then since it only took about 36hrs to process in the lab.  The coordinator said she would check with our doctor to make sure it was ok for her to give us the results.

I received an email later that afternoon stating that Ethan's marrow showed no leukemia (huge praise!!) and that the number of cells with MDS/Monosomy 7 was about 10% (about the same as his last biopsy in August).  They want to continue his monthly blood work and repeat a biopsy in 3-4 months.

All of that to say that we still don't really have any answers. Doctors are uncertain why his levels went down, and have stayed down.  One possible explanation is that the partial immune suppressant therapy he received in July (when he was being treated for Aplastic Anema), allowed his marrow to "reset" and make mostly healthy cells to sustain his body.  However, they aren't sure, because patients with MDS/Monosomy 7 are not usually treated with immune suppressant therapy.  Another, very likely explanation is that God has provided an unusual season of health and rest for our family.  He has given Ethan great strength and joy...




...and we are so humbled, and thankful to be where we are.

I was reminded by the doctor we saw Friday at Vanderbilt that they still fully expect him to need a transplant at some point.  We don't know if they would give him the immune suppressant therapy again, just to see if it would lower his percentage again or not; we'll cross that bridge when we come to it.  The same doctor also reminded me that Ethan is a ticking time bomb for leukemia, and there is no way to predict when it might happen.

For now, we'll take these new, but same results with gratitude.  There is comfort in the familiar.  Thankful for the three months of health and strength Ethan has had, while praying for more months.  We'll take each day, one at a time, trusting God to sustain Ethan.  It is certainly a battle of the heart and mind to speak this Truth to my heart each day, but I have to because joy is at stake. And to have true joy and peace from Jesus Christ is worth me giving up my worries.

Thank you for rejoicing and praying!!  Hoping there is time in heaven for us to sit down with each of you and truly express our gratitude:)

Journeying On,