January 31, 2011

January Recap

It has been a little while since I've done much of a medical update on our little miracles, so here's a little update from the last couple of months.

Both:
-Started crawling the weekend of their birthday, and are now pulling up and using push toys.
-Received decent reports from the opthamologist in that they don't need any assistance right now.
-Responding well to their daily breathing treatments and the RSV shots each month.
-Started a new med that seems to be helping their gagging and reflux, which has been a huge answer to prayer (who wants to eat when you're just going to gag and throw it up). 
-Still go to speech, physical and occupational therapy once a week.
-Being followed more closely by a nutritionist since 99.9% of their nutrition is still through their tubes.

Ethan:
-The poor guy has had 4 new g-tubes since October because of accidents and faulty equipment.  Thankfully only one of those required a trip to the ER.
-Blood pressure still being well controlled with meds and is not causing increased stress on his heart.
-Was charted 4-5months behind developmentally by their rehabilitation doctor.  In some ways this is encouraging because after their first birthday she does not correct for their prematurity.  So she sees a 14 month old acting like a 10 month old, but if they had been born in March they would be 10 months old.
-Will have another swallow study at the end of the month.
-LOVES climbing anythings...especially stairs
-Now weighs 18lbs 1oz

Addison:
-Quickly overcame an ear infection.
-Chest x-rays still don't look great, but are showing small signs of improvement. 
-Another echo in December confirmed that there is still a small hole, but it getting smaller.  Hopefully this will close by next year so she doesn't have to have surgery.
-Was charted 3-4months behind developmentally be their rehabilitation doctor.
-LOVES little tags and pieces of dirt on my floors (she's my details girl).
-Now weighs 19lbs 15oz

We're not really supposed to take pictures at their therapy center, but I caught a few.  I feel like it has been and will be such an important part of their baby years and I want them to picture it when we tell them their story.  Thought I would share a few...














Journeying On,

8 comments:

  1. I'm so excited I found your blog! Can't wait to hear more of your fun stories. our blog is kpdotson.blogspot.com =) See you soon!

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  2. Love these pics! They are just stinking cute! Thanks for the updates too.

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  3. Thank you for starting this! Love the pictures and news! Still praying! Jinni & Shafers!

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  4. So good to see the steps of progress, and if you ever need to keep Addison busy ... my floor has lots of dirt to examine. :)

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  5. Im so glad you guys started a blog! I certainly recognize all the little toys and such in those pictures! Mrs. M is awesome isnt she? Love her!

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  6. Oh what a thrill to read their progress reports!! They are such a miracle and we are trusting God for complete wholeness !! God is good and He NEVER fails. Love the pics ! ......love you and love Ethan and Addison !
    Love,
    Lannie and Blackie ~~

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  7. Thank you so much for following us over here. So thankful for each one of you!

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